Plain Language and Culture

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System Change for Better Communication

 

 

Health Literacy Resources for Organizations:

 

  • The 2003 National Assessment of Adult Literacy (NAAL). This is a nationally
    representative assessment of literacy among adults (age 16 and older) residing in
    households and prisons in the United States.
    http://nces.ed.gov/naal/
  • The report, Health Literacy: A Prescription to End Confusion. This reports defines
    health literacy and its scope, identifies obstacles to creating a health literate public,
    assesses and the approaches that have been attempted to increase health literacy.
    http://newton.nap.edu/openbook/0309091179/html/
  • Literacy and Health Outcomes-The report, Literacy and Health Outcomes, from
    the Agency for Healthcare Research and Quality offers a systematic review of
    healthy literacy outcome studies published between 1980 and 2003.
    Organizations or Programs:
  • American Medical Association, Health Literacy: Help Your Patients Understand
    In 1998, the American Medical Association became the first national medical
    organization to adopt policy recognizing that limited patient literacy affects medical
    diagnosis and treatment. The AMA Foundation has since been working to raise
    awareness of health literacy within the health care community.
    http://www.ama-assn.org/ama/pub/category/8115.html

    Health Literacy Resources

  • California Family Health Council, Inc (CFHC)
    The EPA Division of the CFHC provides training in health literacy and technical
    assistance in developing easy-to-read and easy-to-understand patient education
    materials.
    http://www.epahealth.org
  • California Health Literacy Initiative
    The goal of the California Health Literacy Initiative is to inform and partner with
    individuals and organizations to positively impact the health and well being of
    individuals with low literacy skills, their families, and their communities.
    http:// www.cahealthliteracy.org

  • Canadian Public Health Association: National Literacy and Health Program
    The National Literacy and Health Program provides resources to help health
    professionals serve clients with low literacy skills. The program focuses on health
    information in plain language and clear verbal communication between health
    professionals and their clients.
    http://www.nlhp.cpha.ca/
  • Center for Health Care Strategies, Inc.: Health Literacy Resources
    Each of these fact sheets covers an important aspect of health literacy. The Center for
    Health Care Strategies prepared these fact sheets in 1997 (revised in 2003). Since
    then, the number of publications on health literacy has grown exponentially and the
    issue is now being incorporated into the federal health policy agenda. Search under
    the keyword “health literacy.”
    http://www.chcs.org
  • Center for Plain Language
    http://www.centerforplainlanguage.org/
  • Council of State Governments (CSG): State Official's Guide to Health Literacy
    This guide reports the results of CSG's 2002 National Survey on Health Literacy
    Initiatives, a national survey to find out what states are doing to improve health
    literacy or to make the health care system easier to navigate. The Guide provides an
    overview of state initiatives as well as information on relevant academic research
    and successful private-sector initiatives. Readers will gain an understanding of the
    problem, what can be done to improve health literacy, and how to make the current
    health care system more accessible to someone with low health literacy. Search
    under the keyword "health literacy."
    http://www.csg.org
  • Harvard School of Public Health: Health Literacy Studies
    Health Literacy Studies (HLS) is a research program of the National Center for the
    Study of Adult Learning and Literacy (NCSALL). They are engaged in a variety of
    activities, studies, and explorations linking health and literacy. Their work is based in
    public health, health care settings, and adult education programs.
    http://www.hsph.harvard.edu/healthliteracy/index.html
  • Health Literacy Month: Promoting Understandable Health Communication
    Around the World
    Join with health literacy advocates around the world as, together, we promote the
    need for understandable health information. Health Literacy Month is a grassroots
    campaign in which individuals, organizations, and communities can participate in
    ways that meet their specific needs.
    http://www.healthliteracymonth.org
  • Healthy People Library Project
    The project is designed to provide minority groups and other consumers easy access
    to current, reliable information on selected health topics at their local libraries. The
    health literacy resources listed here have been reviewed and recommended by
    librarians, health professionals, and other experts.
    http://www.healthlit.org/health_resources/health_literacy.htm
  • Institute for Healthcare Advancement
    The Institute for Healthcare Advancement is a proactive organization engaging in
    diverse, innovative, and successful methods of providing education that has a
    positive impact on the future of health care for all populations. The current evolution
    in the health care marketplace drives the need to educate both practitioners and
    consumers on key health care issues and how to successfully address challenges in
    accessing the health care system.
    http://www.iha4health.org/healthliteracy.html
  • Institute of Medicine of the National Academies: Health Literacy
    Health literacy is where the expectations, preferences and skills of individuals
    seeking health information meet the expectations, preferences and skills of
    individuals providing information. Health literacy arises from a convergence of
    education, health services, and social and cultural factors, and brings together
    research and practice from diverse fields.
    http://www.iom.edu/project.asp?id=3827
  • National Institute for Literacy: Health & Literacy Special Collection
    The Health & Literacy Special Collection is for teachers, students, health educators,
    or anyone interested in health education for people with limited literacy skills.
    http://www.worlded.org/us/health/lincs/
  • National Libraries of Medicine Current Bibliographies 2000-01: Health Literacy
    Each bibliography in the Current Bibliographies in Medicine (CBM) series covers a
    distinct subject area of biomedicine and is intended to fulfill a current awareness
    function. Citations are generally derived from searching a variety of online
    databases.
    http://www.nlm.nih.gov/pubs/cbm/hliteracy.html
  • National Network of Libraries of Medicine: Consumer Health Online Manual
    The first portion of this bibliography contains print resources that discuss either
    methods to assess the patient's reading ability or how to evaluate the readability of
    materials. Some articles or chapters discuss both topics. The second portion of this
    bibliography contains Web resources that discuss health literacy. Sources linking
    people to information for patients with low literacy levels and to easy-to-read patient
    handouts are listed.
    http://www.nnlm.gov/scr/conhlth/read.htm
  • NSW Multicultural Health Communication Service
    http://www.health.nsw.gov.au/health-public affairs/mhcs/publications/langindex.html
  • Plain Language and Culture (PLC)
    An organization providing leadership, advocacy, training development services of
    plain language and health literacy educational materials and programs for
    organizations and individuals that serve consumers and families from culturally and
    linguistically diverse backgrounds. PLC offers these services in a manner that is
    culturally and linguistically sensitive and responsive to the diverse
    customers/consumers’ needs.
    http://www.plculture.org
  • Plain Language Network- site of the The Plain Language Association
    International
    http://www.plainlanguagenetwork.org
  • Plain Language Gov (Federal Government Website)
    http://www.plainlanguage.gov/usingPL/privsector/hidcost.cfm
  • Partnership for Clear Health Communication: Ask Me 3
    The Partnership for Clear Health Communication is a coalition of national
    organizations that are working together to promote awareness and solutions around
    the issue of low health literacy and its effect on health outcomes.
    http://www.askme3.org/PFCHC
  • Partnership for Clear Health Communication
    Health literacy resources and membership for organizations.
    http://www.p4chc.org/
  • United States Department of Health and Human Services: Health Resources
    and Services Administration (HRSA)
    HRSA’s health literacy activities assist the Agency in accomplishing its mission: to
    improve and expand access to quality health care for all. HRSA’s health care
    delivery sites, along with training and education programs, work to reach out to those
    with low health literacy skills to improve their quality of life.
    http://www.hrsa.gov/quality/healthlit.htm
  • World Education: Health and Literacy Compendium
    The Health and Literacy Compendium is an annotated bibliography of print and
    Web-based health materials for use with limited-literacy adults. The Compendium
    was developed by World Education in collaboration with the National Institute for
    Literacy.
    http://www.worlded.org/us/health/docs/comp/
  • Asian Health Services
    This site serves and advocates for the immigrant and refugee Asian community
    regarding
    health rights and to assure access to health care services regardless of income,
    insurance status, language, or culture.
    http://www.ahschc.org/
  • Asian & Pacific Islander American Health Forum
    The Asian & Pacific Islander American Health Forum is a national advocacy
    organization dedicated to promoting policy, program, and research efforts for the
    improvement of health status of all Asian American and Pacific Islander
    communities.
    http://www.apiahf.org/
  • Association of Asian Pacific Community Health Organizations (AAPCHO)
    Association of Asian Pacific Community Health Organizations: List of pamphlets
    and other materials available in Chinese, Hmong, Ilocano, Khmer, Korean, Lao,
    Mien, Samoan, Tagalog, Vietnamese. Materials can be ordered, and many are free.
    http://www.aapcho.org/display.pl?template=pp_language
  • Association of Asian Pacific Community Health Organizations:
    AAPCHO's BALANCE Program for Diabetes is designed to work cooperatively
    with the Centers for Disease Control and Prevention and the National Institutes of
    Health's National Diabetes Education Program (NDEP). The primary activities are
    aimed to increase the awareness of diabetes in AAPI communities, improve the
    treatment and outcomes for AAPIs living with diabetes, promote early diagnosis, and
    ultimately prevent the onset of diabetes.
    http://www.aapcho.org/display.pl?template=pr_detail_curr&fkey=id&fval=45
  • Hmong Health Website
    This site is in development but includes a Hmong-English medical dictionary.
    http://www.hmonghealth.org/
  • Khmer Health Advocates
    This website is dedicated to war survivors and their families and is committed to a
    greater understanding of the physical and psychological illness that comes from war,
    torture and genocide.
    http://www.khmerhealthadvocates.org/about.asp?p=0
  • National Library of Medicine, Asian-American Health
    This website is an information portal to issues affecting the health and well being of
    Asian Americans in the United States.
    http://asianamericanhealth.nlm.nih.gov/
  • Selected Patient Information Resources in Asian Languages (SPIRAL)
    SPIRAL provides consumer information in Chinese, Cambodian, Vietnamese and
    Laotian and teaches health care providers to use the wide variety of available, webbased
    patient education resources.
    http://www.library.tufts.edu/hsl/spiral
    Plain Language Tools and Services for Organizations
  • Easy to read asthma information in English and Spanish.
    http://www.oregon.gov/DHS/ph/asthma/resourcebank/
  • Beyond the Brochure: Alternative Approaches to Effective Health Communication
    This booklet is designed to help educators identify means of providing education to
    limited literacy audiences that do not rely upon printed words. It includes
    information on adapting, developing, and testing materials.
    http://www.cdc.gov/cancer/nbccedp/bccpdfs/amcbeyon.pdf
  • Health Information Translations
    http://www.healthinfotranslations.com/index.php
    Iowa State University Extension and the Iowa Department of Public Health:
    Tools for Evaluating Written and Audiovisual Nutrition Education Materials
    Iowa State University Extension and the Iowa Department of Public Health jointly
    developed two guides and evaluation forms to help nutrition educators, public health
    nutritionists, and others select educational materials that best meet the needs of target
    audiences.
    http://joe.org/joe/2000august/tt3.html